The Best Kid Ever : Jeremiah

Jeremiah

So, many of you have been asking about Jeremiah and his condition , I want to describe his condition so you know exactly what he has and how you can pray for Him ! But first I want to tell you about Jeremiah and the fact that we are positive we have the best kid ever !

Jeremiah loves
His play-mat that Grandma and Grandpa Wallace got him , he loves kicking the piano keyboard.
He recently has started this obsession with silky and fuzzy blankets, he loves the burp rags that his Auntie Em and Grandma Keenan made him!
He loves playing patty cake! I shouldn't be surprise because cake is his Daddy's favorite food.
He loves it when Dax licks his face...they will be good buds!
He has started to stand and he loves this new vantage point
Hanging out in the pool with grandpa.

Jeremiah dislikes

Taking baths.
Putting on lotion.
Anything that involves hygiene really, typical boy !
Being with mom after 7:30pm, he gets bored with me and needs his daddy!
 When a fan doesn't work or isn't turned on!

Jeremiah has more loves than hates, my little boy loves life and he is so full of joy! In fact he is really good at spreading that joy, I babies have that gift, I believe it is a God-given gift. Every day I look at my son and I am in awe, Travis and I cannot imagine our lives without him.We both agree that he is the best surprise we've ever had!
A lot of you are asking about his blood transfusions and his condition. Jeremiah was diagnosed at 6 weeks with Hereditary Spheryophytosis, this is a blood disorder where his RBCs( red blood cells) are oblong where they should be shaped like doughnuts. It is because of this that the RBCs break down and he gets very anemic,thus the need for blood transfusion. Jeremiah goes to Phoenix Children's Hospital every 2-3 weeks or so, he has an amazing team of doctors and nurses that know and love him. He is rather popular :) A blood transfusion itself isn't really painful, although getting an IV is really awful, but PCH has a really,really good IV team. A blood transfusion takes about three hours and he is usually sleeping for most of it. Another question we are asked often is if his spleen needs to be removed , the answer ? Time will tell, it is because we caught this early on and he is getting frequent blood transfusions ,his spleen isn't being overworked. In most cases,kids are diagnosed until they are 2-5 so by that time their spleen is just overworked and done. However, we are told that if they can wait until after puberty the problem just corrects itself! We are hoping we get to wait until then or that he will be healed of it completely ! We know this is possible because my husband stopped showing signs at 3! I firmly believe that Jesus can heal my son, because he is the Great Physician and all-powerful. But I also believe that Jesus is using my son in a mighty way in that hospital ,having there on a fairly consistent basis means that we have the opportunity to talk about our lives and our relationship with Jesus!
So, I want to ask for your prayer for our family, please pray that Jeremiah's strength would be increased. Please pray that the medical staff would ask questions and be interested in our life. Pray for God's grace as we accept His will and plan for our life as a couple, as a family and for Jeremiah .

If you have any more questions, feel free to ask!

Much love,

Autumn